It has been two months and I have given ZERO updates. I may be slightly overwhelmed.
But. Every two months, we get a new scan. So, here’s the news: There is some stuff showing up in his brain again. Some “areas of interest.” “Foci of nodular enhancement.”
“Findings are concerning for residual/recurrent disease.” – MRI
Ugh, so we’ve had a super exhausting / incredibly emotional day… er, um, week.
But, I logged back into his account to get the exact quote to write this blog, and there was an addendum: “Findings are worrisome for progression, although pseudo-progression may have a similar appearance.”
Wait, WTF is psuedo-progression??!
We had another appointment with our other oncologist coming up, so we grilled him on pseudo-progression. He said it’s on the list of possibilities given the time frame.
Basically, sometimes scans LOOK worse because of treatment. After surgery, for example, scans are a mess. We learned that pseudo-progression is common after radiation as well… typically within 3 months of finishing radiation. Our scan was exactly 3 months after finishing radiation.
Here’s an article that explains pseudo-progession fairly well. https://www.cancercenter.com/community/blog/2018/09/tumor-growth-sometimes-its-a-good-thing
So. We thought the news was bad. And now we’re not totally sure it’s bad. Which is better.
They said the only way to know for sure, is getting another scan in a few months.
In the meantime, we’ve got an EVEN MORE aggressive / very out-of-the-box treatment plan from our MD at Swedish (who we are quite impressed with).
And also, Pops’s brain function continues to improve. He is remembering names better. And words in general. We have tweaked a few supplements / prescription meds and so far, he is handling his third round of chemo much better than rounds one and two. Less fatigue, less nausea.
We also got a new appetite stimulant that is A. Working, which in turn is B. Giving him more energy, which C. Means he had enough energy to do his own damn dishes this week.
“Hold the Vision.” – Pops